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Our Thoughts on the Proposed Alternative Plan to Reduce System Pressures

As parent carers, many of us find ourselves navigating a flood of discussions, policies, and proposals that impact our children’s futures daily. Recently, a new alternative plan has been put forward, claiming to address the overwhelming pressures within our education and healthcare systems. While some aspects of this plan seem promising, we have serious concerns — particularly about the commitments that we believe could do more harm than good.

Community Rising for #TheFightBack

Like most parent carers, our feeds and conversations are filled with discussions on how best to support our children. This ongoing struggle has ignited a collective voice — a community rising up, ready for #TheFightBack. We’re already campaigning tirelessly for improvements in the neurodiverse sector, especially within pediatrics. This new plan, while adding to our list of worries, also highlights the urgent need for meaningful change.

Supportive Elements — But Not Enough

We do agree with some of the objectives outlined in the plan, such as placing trained professionals directly into schools. The importance of accessible, expert support cannot be overstated — it’s fundamental for fostering inclusive, supportive learning environments. However, our concerns deepen when considering the plan’s proposals to remove Education, Health and Care Plans (EHCPs) from mainstream children’s education.

The Impact on Children Like Finn

Take our son, Finn, as an example. Finn finds school incredibly challenging — socially, physically, and emotionally. He has regressed in many areas and is currently two years behind academically. His EHCP is a vital lifeline, ensuring he receives tailored support that meets his specific needs. Removing EHCPs would threaten this essential structure, risking further setbacks for children like him.

The Growing Need for Tailored Support

The rise in diagnoses of special educational needs (SEN) means that each child’s needs are becoming increasingly unique. Mainstream schools often go above and beyond, providing full-time 1:1 support or specialized in-school inclusion rooms, despite financial constraints. The funding allocated for these supports often falls short of what’s required, placing immense strain on dedicated teachers and support staff.

Why Funding Must Match Need

Removing EHCPs without ensuring adequate funding and alternatives will only hinder progress. We need a system where funding is directly aligned with actual demand, taking into account the current financial pressures faced by schools and support services. Without this, vulnerable children will be left behind, and the progress we’ve fought so hard for will be undermined.

In Conclusion

While we recognize the intentions behind the proposed plan, we believe it must be approached with caution. Our children’s futures depend on a thoughtful, well-resourced system that truly meets their individual needs. As a community, we will continue to advocate for policies that prioritize tailored support, adequate funding, and inclusive education for all.

We stand together in this fight — because our children deserve nothing 

I suggest a friendly public March! Let's unite and make a stand. Parent carers deserve a seat at the decision table too! Get in touch, let's begin a movement! 

https://vm.tiktok.com/ZNdrDdmDH/

Useful petitions to protect our disabled  childrens rights 

https://www.facebook.com/share/19NwRxDErd/