The RORA Project

Parents often find themselves overwhelmed by the abundance of information available. Gaining a clear understanding of the legislation that safeguards children with additional needs can empower you with the appropriate tools to effectively advocate for their rights and well-being. Here you can find all current UK legislations relevant to managing the direction of send needs

Introducing the Ultimate SEN Journal: A Family’s Essential Companion

We are excited to unveil our latest initiative — the Ultimate SEN Journal, specially designed to meet the unique needs of parents and caregivers of children with special educational needs (SEN). This journal is more than just a notebook; it’s a comprehensive tool crafted to support your family’s journey, making documentation, assessment, and self-care easier and more meaningful.

Thoughtfully Designed for Neurodiverse Minds & Inclusive Living

Featuring a beautifully crafted front cover inspired by neutral boho vibes and our beautiful home town stamford Lincolnshire, complemented by geometric shapes and lines, the journal is visually engaging yet calming — perfect for neurodiverse minds. Inside, you'll find not only dedicated journaling sections but also specialist pages designed to simplify the often overwhelming process of documenting your child's progress and needs.

Features Include:

Trigger tracker pages to identify and manage sensory or emotional triggers

Medication logs for easy medication management and tracking

EHCP review pages, created specifically to streamline those long, important meetings

Additional pages for assessments, appointments, and observations

Prioritizing Mental Health & Self-Care

We believe that caring for your child's needs begins with caring for yourself. That’s why mental health support and self-care prompts are integrated into the journal, ensuring you maintain your well-being while navigating your family’s journey.

Promoting Diversity & Community Engagement

Our primary goal is to promote diversity ad inclusion. We are committed to creating a community-driven project, and as part of this, we’re launching a crowdfunding campaign to fund direct assessments and therapy sessions for primary school children aged 6-12 in Lincolnshire.

Get Involved & Win! Donate and support the project

We’re also excited to invite the local community to participate in our creative initiatives! Submit a piece of artwork or writing for a chance to be featured in every hard copy of the journal. Plus, all submissions will enter you into a draw to win two tickets to our official journal launch event, scheduled for September 2025 (date TBC).

This heartfelt song by Lee Clapton from Peterborough, dedicated to his daughter Kara, powerfully captures the pain of watching a child regress due to Niemann-Pick Disease Type C—a cruel form of childhood dementia. Through raw emotion and tender melodies, Lee mourns the loss of the life Kara might have had, while also expressing an unbreakable love and resilience. It’s a poignant tribute that resonates deeply, reminding us that even in the face of unimaginable grief, love endures and speaks through the music of a father’s devotion.

Lee Is also planning a skydive to support the rora project. Full details to follow.

Support families in need with every purchase. Help fund vital assessments or therapy for children struggling with autism